tag:blogger.com,1999:blog-81139719268579004472024-03-13T13:24:40.480-07:00making narcolepsy look good;young, attending college, playing soccer
and attempting to stay awake long enough to enjoy it all.Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.comBlogger63125tag:blogger.com,1999:blog-8113971926857900447.post-57783230670276762082015-06-03T07:38:00.003-07:002015-06-03T07:39:22.024-07:00Closest You'll Ever Get To This Side Of Heaven<div class="MsoNormal">
“Which one of you goes by the name Sarah?”</div>
<div class="MsoNormal">
“That would be me”</div>
<div class="MsoNormal">
“Awesome, My names Paul and you’ll be risking your life with
me today”</div>
<div class="MsoNormal">
Those are the scripted words my Tandem Skydive Instructor
spoke, hilarious but also made that nervous giggle come about. I wasn’t nervous
booking, signing my life away or driving to Sky Dive City. I wasn’t really any
emotion other than excited and curious to see if I would have Cataplexy mid
air. Paul grabbed me a harness and I stood about while we got rather up close
and personal tightening and adjusting each strap. </div>
<div class="MsoNormal">
“I think this one goes like this”</div>
<div class="MsoNormal">
“Wonderful, is that an educated guess?”</div>
<div class="MsoNormal">
“No, I learned everything I know on YouTube so it’s pretty
accurate”</div>
<div class="MsoNormal">
“YouTubes great for this stuff haha”</div>
<div class="MsoNormal">
He tightened a few things, asked how tight it felt and asked
me to do a few motions to make sure it was the right fit. Paul then walked me
through a few of the steps we would take, seeing as he would be strapped in
behind me the next little bit were going to be rather close. </div>
<div class="MsoNormal">
“We are going to be sitting on a bench, you in front of me,
straddling the bench. We will fly up to 13500 ft and I’ll then attach us to one
another.”</div>
<div class="MsoNormal">
“Basically I’ll be your little spoon”</div>
<div class="MsoNormal">
“Unwillingly yes you will aha.”</div>
<div class="MsoNormal">
He then went through the hand gestures he would be putting
in front of my face. The different positions we needed to be in to walk to the
opening in the plane where we would jump. The position we jump in, head back
arms holding on the harness. Then the 3 taps that I would feel once we took the
leap of faith. Three taps means bring your arms up, and your feet back…the fun
begins. We would turn/spin and then James Bond fly through the air. From there
he would give me the reins and I could do what I please for the rest of the
free fall.</div>
<div class="MsoNormal">
Paul stuck out his finger and said</div>
<div class="MsoNormal">
“This is the most important, it’s the international sign for
pull your parachute.”</div>
<div class="MsoNormal">
“I HAVE TO PULL IT? That’s not safe”</div>
<div class="MsoNormal">
“Well if you don’t do it within the time span I ask you too
I have ability to pull it too”</div>
<div class="MsoNormal">
“That’s safe, I can deal with that”</div>
<div class="MsoNormal">
We then did another check on the harness, making sure it was
tight where it should be and loose in the one spot for the jolt from pulling
the chute. Time for the plane ride where more unsure giggles from myself
happened. Scripted jokes were then told by both Paul and Maples Tandem Jump
Instructor Elias and of course more jokes about there experience in skydiving.
Regardless I wasn’t nervous, even looking out the plane as we got higher and
higher reaching the clouds. I was worried I would freak out at the ledge, I was
worried I would forget one of the many symbols we went over but I was excited.
Everyone in the plane was pumped, handshakes happened all the way around and
then they all back flipped out, spiraled out or held onto the side of the plane
and drifted away. It was exhilarating to watch.</div>
<div class="MsoNormal">
I turned to Maple, stuck my pinky out for our ritual pinky
promise for just about everything in our life.</div>
<div class="MsoNormal">
“Pinky promise you’ll see me at the bottom alive” </div>
<div class="MsoNormal">
From there Paul and I squat walked attached to one another
to the ledge, his final words before the jump...</div>
<div class="MsoNormal">
“This is the closest you’ll ever get to this side of heaven,
enjoy it”</div>
<div class="MsoNormal">
I looked down and through the haze of clouds you could see
the green specks of land. I didn’t feel nauseous it honestly just looked
surreal.</div>
<div class="MsoNormal">
We leaned forward, leaned back, the leaned forward, and like
that we jumped out.</div>
<div class="MsoNormal">
The first seconds were the feeling of falling, that feeling
you get on the way down on a rollercoaster. It lasted maybe 3 seconds, and then
it was just pure bliss. It felt like flying, it felt like floating, and it was
Earth like I’ve never seen or felt it before. The air felt different to breath,
the silence was oddly soothing. We spun right, we spun left, and we flew
through the sky. It was the quickest yet slowest minute of my life. Parachute
symbol came into my peripherals, so I felt my harness all the way down to my
side and found the pull. I pulled straight forward, and just like that we were
jolted into a different kind of floating. </div>
<div class="MsoNormal">
The next minute was spent turning in circles making sure I
saw everything I just jumped over. Practiced our landing technique and took
ourselves over into the landing area. Slow left, then a quick left and we
floated down, legs up ready to slide in on our bums.</div>
<div class="MsoNormal">
Safe and sound and on the ground in one piece. No adrenaline
rush, no cataplexy, just pure ecstasy. </div>
Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-23502608316105159342015-04-07T08:54:00.002-07:002015-04-07T08:54:46.058-07:00I'm still alive<div class="MsoNormal">
I’m not saying Jinx cured my narcolepsy, I’m saying that
this dog has helped me or forced me to find a routine that works with my
narcolepsy.</div>
<div class="MsoNormal">
These past few months I’ve honestly felt like I don’t have
narcolepsy. I’m up early, in bed early, and getting fresh air multiple times a
day. I believe the consistent routine, fresh air and joy of having a dog have
been the largest contributing factors to my overall wakefulness. I never had a
motivating factor to be awake early, let alone out walking regardless of weather…but
now with Jinx I have no options. We wake up at 6am; we walk for 10-20minutes
(weather depending). We go home, we eat a healthy breakfast, we play and then I
get ready for my day. Some days I even squeeze the gym in at 5:30am. It’s
really been awesome for me. I feel awake, I feel motivated to get things done,
and I am overly happy to be looking after the little munchkin. We walk a few
times each day and the sunshine is nice, it’s working and for that I am
grateful.</div>
<div class="MsoNormal">
My summer is looking exciting, I’ll be done working May 1<sup>st</sup>.
From that day on I’ll be working my own hours between photography and my Mamas
ceramics business. I can’t wait to see where the journey takes. I’ll be happy
with the amount of work that I can accomplish as I’ll be able to dedicate more
of myself. I might have less money, but money isn’t everything when you’re
finding joy in your daily endeavors.</div>
<div class="MsoNormal">
I’ll be doing a trade show at the end of the month, it’s a
Mommy show. I’m excited to take photo booth style pictures of little toddlers
and babies, it will be a neat experience. I hope the investment brings in more
clients, and gets my name out there. I’ll be praying for good weather so that
they have a good turn out! </div>
<div class="MsoNormal">
<br /></div>
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<div class="MsoNormal">
All in all, I’m happy. I’ve moved out, I’ve found success
and I’ve got a lot of love in my life. Thanks parents for letting me get the
little rascal 6 months ago, best decision you ever made ;) haha</div>
Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-77720417494358288232014-11-24T12:14:00.000-08:002014-11-24T12:14:02.651-08:00Failing the Balancing Act<div class="MsoNormal">
If work life balance were a class I’d be flunking it like it
was a talent of mine. I have worked the past 14 days straight, and I will
continue to work for a total of 25 days in a row. I will have one day off and
on that day off I am certain I’ll spend half of it editing all the photo shoots
I need to finish editing. I am pretty bitter about the situation. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I get that I’m young and when you’re young you have to work
your ass off… but I also hate the struggle it is to wake up in the morning.
Sure I am still getting 8 hour sleeps, but that’s not enough when I’m working
every damn day. I’m exhausted, mentally and physically. I want a break and
Christmas is just more chaotic than it is a break when it comes to working a
job at the mall.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I also get that I could say no to people when it comes to
working, but when I’m in my first year of my Photography business saying no is
the last damn thing I should be doing. Therefore I juggle my schedule to accommodate
clients and support my growing business. Business has been booming but with how
busy I am …I’m almost bitter towards how successful I am becoming. I should be
celebrating how great things are with my photography, but instead I’m stressed
out and hating how all my down time is spent in front of a computer screen.</div>
<div class="MsoNormal">
<br /></div>
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<div class="MsoNormal">
Maybe one day I’ll have a life and a career and all this
grumpy bitterness will be a thing of the past. I really just need a day spent
curled up in a ball feeling sorry for myself, otherwise a day will come and I’ll
have a meltdown crying to my parents about how life sucks and it’s not fair and
I hate my narcolepsy lalalala.</div>
Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-91599511550115671332014-10-23T17:35:00.002-07:002014-10-23T17:35:51.383-07:00Advice; Take it or Leave it<div class="MsoNormal">
I got a lot of questions from parents with kids about
college and I did my best to answer how my experience was; I figured I would
sum it up here and break it into the advice I would give you. My college
experience was amazing; it was one of the best things I did for myself. Moving
away from home, playing soccer and pursuing my interest in photography. For as
great as the entire experience was I’d be lying if I said I didn’t have trouble
managing my narcolepsy. Ask my mom or dad how many times I called them crying.
She probably won’t remember the number but it was tough for me to balance
school, soccer, health and a social life. I can’t say it was ever in a perfect
balance, I felt that a lot of days I had to pick 2 and hope the other 2
wouldn’t suffer too much. My parents, each time listened and sympathized with
me and at the end of the conversation they said. <i style="mso-bidi-font-style: normal;">“No ones requiring you to do all that you are doing”</i> It was always
a reality check for me. I didn’t need to get an A in every class, I didn’t need
to be on the starting line up for every game, and I didn’t need to be out every
other night being social to maintain friendships. I was the one holding myself
to this high standard and when I didn’t reach it, I was the only one who was
suffering or who was disappointed in myself. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Apply for disability.</div>
<div class="MsoNormal">
<span style="mso-tab-count: 1;"> </span>If
you don’t think you need it, step back reevaluate and think of the worst
possible situation you might find yourself in and then go and file with the disability
office. You might never use it, but your teachers will have a better time
understanding you missing something, needing extra time or falling asleep if in
their eyes you have always had narcolepsy. If you end up needing it and you’re
not filed as <i style="mso-bidi-font-style: normal;">disabled</i> then you will
look like you are just making up some random excuse when something does come
up. Also note takers can be a huge saving grace for studying, reviews, and just
as a general help to you doing well in class.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Teachers</div>
<div class="MsoNormal">
<span style="mso-tab-count: 1;"> </span>Some
teachers are sadly no longer interested in their students’ education let alone
their health. After the first day of every class I registered for, I took my
professor aside said something along the lines of… <i style="mso-bidi-font-style: normal;">My name is Sarah, I have a rare sleep disorder called Narcolepsy. It’s
a medical condition that can cause me to fall asleep randomly. I am hoping it’s
not going to be a problem in your class, however if I am to fall asleep during
class I want you to know that I’m not doing it to be rude or disrespectful. I
would like to be woken when I do sleep, but would appreciate your help in
making sure it’s not done in an embarrassing way. If you have any questions
about it or concerns please feel free to ask me about it at any time.<o:p></o:p></i></div>
<div class="MsoNormal">
Usually my teachers were extremely understanding, asked a
few questions and then moved on. However I did have the odd teacher that just
blew me off and it was like <i style="mso-bidi-font-style: normal;">K sick, kind
of busy here.</i> Not much you can do about those teachers, it will cause you
more harm and disappointment trying to educate them on something they are
choosing not to come to terms with.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Meal Plans (If you’re away from home)</div>
<div class="MsoNormal">
<span style="mso-tab-count: 1;"> </span>If
your college has an option for a meal plan, even if it’s not the full meal deal
but so many things per semester I would highly recommend it. I found I was so
exhausted in between practices/classes and homework that I would pick napping
over eating and I was rather unhealthy. Having the meal plan option could
ensure you are eating on days where it’s just not physically possible to make
yourself a sandwich. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Smart Schedule</div>
<div class="MsoNormal">
<span style="mso-tab-count: 1;"> </span>If
you’re not a morning person and that’s where your main struggles are, do yourself
a favor and don’t sign yourself up for the 3 hour 7am class. You’ll never make
it consistently and you’ll waste your money. Don’t schedule classes from 7-5
with no breaks if that’s not a time frame you’re ever able to stay awake for
without naps. I took a few evening classes to help with having breaks for
soccer practice/naps and maintaining my sanity. I also took a few online
courses so that I had the luxury of having a day off in the week for catch up. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Motivation</div>
<div class="MsoNormal">
<span style="mso-tab-count: 1;"> </span>I
know it’s common to go to college right away and <i style="mso-bidi-font-style: normal;">figure </i>out what it is you want to pursue, but I highly recommend
that you don’t go unless you have a motivating factor. You’re not going to want
to do your homework let alone show up to class if you feel like it’s not
something you’ve got strong interest in. I wanted to play soccer, and I loved
photography as a hobby. If I didn’t show up to class or got bad grades, my
coach was getting an email from my professors and I wasn’t going to play. I was
beyond motivated to get those grades so I could play in every game.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Social Life/Party Life</div>
<div class="MsoNormal">
<span style="mso-tab-count: 1;"> </span>Parties
are fun, drinking is fun, being social is all part of the big college
experience. However it’s not a requirement and can really set you up for
failure. That party where you stay up till 4am will all be a blur years from
now, but that class you don’t show up for because you were out late will stick
with you forever. I’m not saying don’t party, don’t be social but pick and
chose your nights and you <b style="mso-bidi-font-weight: normal;">can </b>go to
a party for an hour, not drink, and leave. If they’re friends worth keeping
they will be happy you showed up and will be understanding of your choices. Be
smart about whom you drink with, whom you party with and how much you do it. It
really takes a toll on your narcolepsy.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Doctors</div>
<div class="MsoNormal">
<span style="mso-tab-count: 1;"> </span>For
me this was a huge one, I moved countries to attend school so if something came
up I couldn’t do much of anything until I was home for the summer or winter
break. My doctor was a gem about it all, sent me with a letter explaining my
diagnosis, and also a complete copy of my sleep study. That way if I got into
an emergency situation etc I had a copy of my sleep study, a copy of the meds I
take and of course a letter to contact my doctor etc. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
All these factors are in no way shape or form rules you should
follow, they’re just more or less things I found helpful in my college
experience. Some things work for people that don't work for others, figure out what is best for you. I had much success despite the struggles I had with narcolepsy. I
graduated Photography with a 3.6 GPA and also managed to get a certificate in
business management. On top of my academics I was an All American athlete two
years in a row. For anyone who doubts being able to finish college, I’m living
proof that finding the right combination of everything related to your
narcolepsy can leave you having success. </div>
<div class="MsoNormal">
Cheers</div>
<div class="MsoNormal">
<br /></div>
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<br /></div>
Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-48118723386879748522014-10-20T20:52:00.000-07:002014-10-20T20:52:29.465-07:00Narcolepsy Network Conference Denver<div class="MsoNormal">
“I love my narcolepsy. It makes me unique and it’s kind of
hard to be different in today’s world” Said by a 17 year old guy, and honestly
he sounds like the male version of myself when I was his age. It’s been a
spectacular weekend full of conversation that uplifted me and verified why I
came.</div>
<div class="MsoNormal">
I had forgotten how much chaos there was leading up to my
diagnosis and how funny certain moments in my life have been. It’s been a good
reminder to continue to laugh at myself, my narcolepsy and this blessed life I
am living. </div>
<div class="MsoNormal">
I’ll be completely honest, for how many seminars were going
on I managed to get my ass to the bare minimum. I think I sat down for a total
of 3 actual guest speaker related seminars. The rest of the time I was off
meeting other young people with narcolepsy, exploring Colorado or enjoying a
beer with a new found friend. I don’t think I really came to the conference to
sit in and listen to people talk about what it is I have. I don’t have that
many questions in my current life. I don’t think I was looking for any
confirmation that what was happening in my body was happening in others. I just
wanted to meet people, relate to them and enjoy conversations about life and
where we are headed. I got more than what I expected out of the weekend. I’m
walking away with more friends, friends who might experience things before me,
talk me through the highs and lows of my future and all around just <i style="mso-bidi-font-style: normal;">get it</i>. </div>
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<div class="MsoNormal">
So thank you to all of the wonderful people I met, connected
with and shared the experience with. Chances are high I’ll be in attendance in
Minneapolis next year.</div>
Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-22193830785012582012014-10-17T09:39:00.001-07:002014-10-17T09:39:17.364-07:00Denver Narcolepsy Network<div class="MsoNormal">
I went from being extremely busy to being ridiculously busy.
I picked up Jinx on Tuesday the 7<sup>th</sup> and have had the best 10 days
with her. Yes I have to wake up throughout the night to let the little 9 week
old bundle of joy go to the bathroom. Yes I have to wake up early to feed her
and yes I literally can’t leave her unattended, but no…no I am not annoyed by
her or inconvenienced by her. I love that little puppy more than I ever thought
I could love something. I am certainly going to miss not seeing her for the
next 4 days.</div>
<div class="MsoNormal">
Narcolepsy Network Conference is in Denver, Colorado this
year. I managed to find a reasonable flight (Canadian flights are never that
cheap) and I saved a few pennies over the past months as it’s something I
really wanted to do. I can’t really find a definite reason as to why I want to
attend, I’m really not in any dysfunctional time in my life or time of needing
support.<span style="mso-spacerun: yes;"> </span>Sometimes I almost feel
guilty even writing this blog because I know how many people haven’t found the
right meds, right job, right friends, and sadly don’t have the same supportive
family as I do. I have what I would call a damn near dream life. I have my
dream job, my meds work near perfect, my bad days really aren’t that bad, and
my friends and family get it to the best of getting it abilities. My major
concerns are within financial goals, but I’m only in year one of my business.
It’s not like I am unable to afford rent, food, transportation or any of the
necessities. A lot of what I read on the support group are people in desperate
times, losing jobs, unappreciative doctors, bad combinations of medications,
and horrible experiences. I feel awful for each and every one of them because
they’re in such a negative place and I was once in that place too… only I
experienced those dark times and moments when I was 13-16 years old. I was
given the opportunity it figure my narcolepsy out at a much earlier age and at
an age where I wasn’t supporting anyone or even myself.</div>
<div class="MsoNormal">
I suppose what I am getting at is I am feeling rather
indifferent about this conference. I think it will be amazing and uplifting to
meet others with narcolepsy who are older than me, younger than me and
especially around the same age as me. I am excited to attend the seminars to
learn more about this crazy diagnosis we all seem to be stuck with. I just
suppose I am a little worried it might be a negative experience if most of the
people have a negative feeling towards their narcolepsy. I am in a good place
in my life right now, and I guess this conference is more for me to support
others with their narcolepsy than it is for me to get support in my life.</div>
<div class="MsoNormal">
Excited to meet you all!</div>
<div class="MsoNormal">
<br /></div>
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Cheers</div>
Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com1tag:blogger.com,1999:blog-8113971926857900447.post-32716994370394401432014-09-30T09:04:00.001-07:002014-09-30T09:04:27.838-07:00I Bought Myself a Best Friend<div class="MsoNormal">
I could explode with happiness and excitement. I’ve picked
out my Bestest Best Friend and I get to pick her up on Tuesday! She’s a baby
boxer, just the cutest little gal you’ve ever seen. I’m a little biased but I
will post photo’s of her and I’m 99% sure you won’t be disagreeing.</div>
<div class="MsoNormal">
I’ve always grown up with dogs, boxers to be exact! I love
the breed, honestly couldn’t imagine a life without them and now I don’t have
to. We currently have Puma, she turns 8 years old in a few weeks. She’s a
complete gem and I love her to death. That being said she is clearly my Mamas dog. Rightly so because as a puppy my Mama did all the work with her and I just
played with her! This new puppy will be mine to work with, which excites me. It
give me a dog to work with in agility, a dog to call my own, take me out for
walks and climb into bed with me for nights of Netflix. I’m ready for the long
nights of kennel training, the early mornings to feed and walk and the amount
of PICTURES I get to take. Seriously this is every photographers dream. Haha.
If people thought I took a lot of pictures of Puma, they should be concerned for
my new puppies future in front of the camera. ;)</div>
<div class="MsoNormal">
Anyways, I’m off to go visit her out at the farm…</div>
<div class="MsoNormal">
<br /></div>
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<div class="MsoNormal">
Meet Jinx.</div>
<div class="separator" style="clear: both; text-align: center;">
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<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ9y_AvAkHeK_IS_G5DchewDxg66c1X6V8ItTH1R0aMlI-OnheEt_jl_c2zVzxxM5mYgKz7fXKr8gsuA8RafpGXBD97J07xgRz9HMdLhcDOq5ZmqgigDZDCOpdxNek5WiiY4zDtrQt2wE/s1600/jinx.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ9y_AvAkHeK_IS_G5DchewDxg66c1X6V8ItTH1R0aMlI-OnheEt_jl_c2zVzxxM5mYgKz7fXKr8gsuA8RafpGXBD97J07xgRz9HMdLhcDOq5ZmqgigDZDCOpdxNek5WiiY4zDtrQt2wE/s1600/jinx.jpg" height="400" width="400" /></a></div>
<div class="MsoNormal">
<br /></div>
Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-87092964342820426592014-09-19T08:39:00.004-07:002017-10-21T12:17:04.044-07:00Crushing Goals;<div class="MsoNormal">
This summer has been the best one yet, not because I went on
the most trips, got the best tan or had some kind of great story to tell
everyone. Mainly it’s been the best summer because I accomplished and crushed
so many goals I had set for myself. At work we have goals up on the wall, 1
year, 5 year and 10 year goals. I’ve had to rewrite them twice since May.
Rewriting goals because your life changes is mediocre, rewriting goals because
you crushed and accomplished them prior to a set deadline is fun and rewarding!
</div>
<div class="MsoNormal">
I’ve photographed my first wedding; I’ve built a portfolio
that is better than I imagined it would be two years post College. I’m super
excited for next summer and next wedding season. This fall and winter will be
full of advertising of myself and ensuring my next summer is full of weddings
and families.</div>
<div class="MsoNormal">
This fall I’m hoping to get some photo shoots in, a few more
couple based shoots than my regular family. I may have to do some free shoots
for couples and have them dress a certain way etc so that I can add those to my
portfolio. </div>
<div class="MsoNormal">
Needless to say I am excited for my business and the way it
is going. They say it takes 5 years to create a successful business. This
January will be 1 year since I really started charging, and 2 years since
College. I feel like I am right on track to be more than successful in another
3 years time. </div>
<div class="MsoNormal">
I’ll share some images below, but you guys can also check
out my website to see more pictures etc! </div>
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<div class="MsoNormal">
Look forward to meeting some of you in a month at the
Narcolepsy Network Conference!! Hooray! </div>
<div class="MsoNormal">
<br /></div>
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</div>
<div class="MsoNormal">
<br /></div>
Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-55566893234516783812014-08-29T14:33:00.001-07:002014-08-29T14:33:12.431-07:00Twenty-One;<div class="MsoNormal">
I’m turning 21 on Sunday. It’s apparently a milestone
birthday and it’s to be celebrated bigger and better than previous birthdays…
or that’s what my friends past 21<sup>st</sup> birthdays and social media has
told me. Everyone wants to know when I’m headed to Vegas…apparently it’s just
the “trip” you take when you turn 21. I have zero interest in it to be quite
honest. I think after 14 countries and many drinks with many different people…
the Vegas vibe has me a bit turned off. The city doesn’t offer much other than shows,
shopping, booze and gambling. I’m not a big shopper, drinker and I’ve never
actually gambled. </div>
<div class="MsoNormal">
Needless to say I’m not totally stoked on this birthday, for
me 21 means getting your shit together…and being on your own. Not being on your
own in the move out kind of way but in the how the government sees you. You’re
no longer attached to your parents’ healthcare benefits; you’re no longer under
your parents name in a lot of ways. You’re a full-fledged human being and let
me tell you people…it’s expensive. Healthcare is not cheap and with Narcolepsy
I cannot afford to ever not be on healthcare. Thankfully for me I was under a
certain health care provider while I was diagnosed with Narcolepsy so they
cannot deny me coverage so long as I never leave them…this means never miss a
payment, never remove myself from their plan, never screw this up or I’ll
eternally screw myself over. At $70 a month it’s not an overly expensive plan
however my meds per month are about $80. That’s just for my daily med that
keeps my narcolepsy in check and my life the way I like it. $150 a month is a
lot when you’re broke, trying to start your own business and trying to move
out. $150 a month is doable, but what if I get sick…it seems to happen often.
Anyways that’s all what turning 21 means to me, and makes me a little less
excited about being this glorious fun filled age. Haha anyways.</div>
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<br /></div>
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Looks like I’ll be headed to the Narcolepsy Network
Conference in Denver this October, will I be seeing any of your beautiful faces
there?! Hope so.</div>
Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-55753773988408025432014-08-13T21:26:00.000-07:002014-08-13T21:26:27.313-07:00Finding time for me;
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House sitting has given me tons of time to relax, I don’t
know what it is and for how busy I’ve been I’ve found time every night to come
and sit by the dock, sometimes paddle board around, sometimes read. It’s almost
like I am on vacation however I have responsibilities. I feel that maybe when I
am at home it’s easy to get caught in front of the tv, or take the things my
own has to offer for granted.</div>
<div class="MsoNormal">
The past three days I did a Juice Cleanse. Why? Well
honestly I felt obligated to use the juicer that this house has but had no idea
what to juice. That lead to juicing my brains out and a three-day cleanse. I
didn’t nap once while doing the cleanse and I didn’t feel starved like I
thought I might. Did I find all the juices tasty? Not at all, some I even had to
plug my nose to down. However I completed it, feel amazing and am shocked at
how much energy I had on it. When I really think about it though, eating clean
and healthy diets has always influenced my narcolepsy in a positive way.</div>
<div class="MsoNormal">
I’m going to do my best to eat better over the next couple
weeks since this cleanse is done. I’ll see what I can do for my energy level
via food.</div>
<div class="MsoNormal">
Anyways, it’s time for a little more photo editing and then
off to bed before some more photo editing tomorrow and then work in the evening.
This is the life I signed up for though, so I’m more than grateful for the fact
that I even have photo’s to be editing. Let alone paid jobs of photo’s to be
editing. Night! ;) </div>
<!--EndFragment-->Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com1tag:blogger.com,1999:blog-8113971926857900447.post-52586342025438744112014-05-31T13:00:00.001-07:002017-10-21T12:15:22.270-07:00Pura Vida;I'm extremely saddened to be coming home, but I'm going home with a happy heart.<br />
"The cure for all is salt water; sweat, tears or the ocean."
<br />
I will stand behind that quote till my dying day. It really is the truth. I feel a thousand times better after the gym, after a good cry or vent with a friend or my mom. And the ocean has to be the most relaxing and rejuvenating thing we got on this planet. I may have grown up in the mountainous area but I am an ocean girl at heart. The quote may direct you to think I was in a bad place when I left or I was in need of a cure. That's not true, I was however not completely happy. I didn't feel alive with what I was doing on the daily. I have goals and dreams of traveling and I need to look more at working to achieve those than simply just existing to get by.
<br />
It's always been a toss up as to what country I've been to that's been my favourite. This trip kind of cleared the air on that subject, Costa Rica is it. It's that country, they've just got it all. They're happy, they're positive and they really take advantage of all the land has to offer. It's a gorgeous country, and the people I met on the trip made it a thousand times better. It's not just about where you go or what you do it's half as much about who you meet and who you experience things with. The three girls I roomed with on the trip were the people I needed to share these experiences with. They wanted to run out in the thunderstorms just to feel the rain just as much as I did. They wanted to drive around on ATVs pretending to speak Spanish for a whole day. They wanted to drop in on waves that destroyed us, go for runs that turned into walks and go skinny dipping even when the guards to the pool said no. They wanted to stay up late to talk about the serious stuff, our dreams, our goals and our pasts. They told stories that captivated my attention and made me feel what they felt in those moments. They're my kind of people and I'm lucky we all crosses paths. It's amazing how much you can get to know someone in 2 weeks time, it's remarkable how much I've laughed in the past two weeks because of them. I'll surely be seeing them this summer, or at least chatting with them!
<br />
<br />
Pura Vida!Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com1tag:blogger.com,1999:blog-8113971926857900447.post-18904487899974379132014-05-22T18:24:00.000-07:002014-05-22T18:31:40.657-07:00Atv rides with the wild oneHad a time and a half today acting like a wild child with my friend Jen. We rented an atv and went motoring around roads that lead to no where, trespassing signs and anywhere but where we wanted to go. We giggled ourselves stupid the entire time and sang songs we didn't know the words to. It was awesome and well worth the $10 we each paid.
<br>Surf was mediocre today. I got slapped around silly. Caught a half dozen decent waves and then called it a day. It's exhausting trying to paddle out past the current. Consider myself stronger. Also I've gone six days without burning. Unbelievable. Absolutely crazy for my white complexion. I always burn. Even ask my mama! Well so far I only have a burned nose and hair line. It's pretty amazing especially compared to my peers and how badly burnt they have gotten!
<br>Tonight's a live band after the NHL game. I'm less interested in the hockey while on vacation and more interested in the beer and good company that comes with it.
<br>Surfing tomorrow morning and probably evening, super stoked at how much I've improved and how fun these people have been to be around.
<br>Squeezing in a nap before dinner so I can stay out late with the crew! And by late I mean past 10pm. Haha!Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-22850096644811178012014-05-21T12:07:00.001-07:002014-05-21T12:07:19.243-07:00Oddest reunion and other thingsEveryday I'm reminded of my trip to Europe and everyday I'm reminded why I love meeting new people. Mainly meeting people who love to travel.
<br>Yesterday I had the craziest moment. I was taking pictures of sunset and out walks a guy whose looking at me funny. Immediately I'm thinking I know this person, and before my brain figures it out I'm blurting out "oh shit that's rick". Hahaha as soon as I said it my mind went back to u12 soccer when I was 9 years old. My mind was boggled, how am I in Costa Rica and seeing someone I haven't seen in my own hometown in 6-7 years plus. It was great to see him, hear about his life, the yoga, the foood, the life and the dream he is living.
<br>Today we got a surf lesson and were out on the ocean for 2 hours. It was a blast, caught some good waves. Wiped out a bunch and added to my collection of sore muscles and bruises! We will be back out by 4pm for another session and then stay for sunset!
<br>The people on this trip are awesome, we got drinking and playing games last night. It was a lot of fun, a lot of laughs.
<br>My napping has been often and timing hasn't always been great. I napped after dinner last night and came back out for drinks. Not ideal but you gotta work with what you got.
<br>Anyways, time to tan. :)Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-90625469749398853422014-05-19T21:12:00.001-07:002014-05-19T21:12:45.102-07:00Battle bruises and peopleI'm alive! Napping like a champion and generally kicking ass at life. I'm feeling invisible but my bruises say otherwise.
<br>
<br>My trip into Costa Rica was awesome, after meeting the one couple I later then met an old man. Great guy, great story and such a cheerful person. We got talking, he's lived in Costa Rica for 2.5 years, going to move to Belize and was headed back to Costa Rica to collect his things. He had never been married but he has a dog ginger bear and she passed away so he got up and left the next time, sold everything and decided Belize was the new destination. He was 80 some odd years, healthy and extremely happy. He's been to 130+ countries, owned modelling agencies signed by the playboy mansion and Hugh Hefner was a personal friend. He's dated hooters girls; as in the 2002 hooters girl of the year. Flew for an airline for 30 years and was in the army. He had stories like no other and his passion in telling them was phenomenal. He offered me his first class ticket for the flight to Liberia which I kindly rejected. I told him I couldn't take something he's earned and he said he would send back a drink to my
<br>section. When I landed he made sure to find me and give me a hug and make sure I had a ride because it was late and he worries about the young in this country. It's old people like this that I absolutely love. They make my travels amazing and they honestly have the best stories. I love hearing how happy old people are and when they tell stories about "that one time" and their face lights up and they stop to chuckle to themselves before finishing the sentence. It's these stories and these people that make me want to live the life I have to the fullest. I want those stories and I want those moments. Bob was a great guy, and I'm so happy he coincidentally asked me for the time so I could ask him about his life.
<br>I love hearing stories and it's the main reason I love travelling.
<br>
<br>There are many reasons why me and people who speak English as a second language aren't best friends. The main reason being I am a sarcastic asshole and that's not often translated in people who speak little English or English as a second language. It's hilarious when they take things so literal and try and you try and explain that no no it's not like that. But it's also awkward as all hell.
<br>This trip there's a bunch of French girls and I think I'll have to learn to shut up or forever be an asshole on their mind. I'm sure they have another word for me, I'm certain I won't understand it. Haha.
<br>Either way, Costa Rica is amazing. It's gorgeous, it's hot and it's waves are crazy. Tamarindo has murdered me. I've got bruises beyond belief and it's been one full day here.
<br>Some idiots, didn't hold onto their surf boards in the water and well my shin got stabbed so good it's a green welt. I also took some ones board to my right ass cheek and have a blue bruise/welt forming. It's like walking with a Charlie horse. Needless to say I've learned to avoid said idiots when it comes to surfing.
<br>
<br>New city tomorrow. Night pretty people.Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-52048867637184484862014-05-03T15:38:00.002-07:002014-05-03T15:38:39.831-07:00Misconceptions or Ms.Opportunities;
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I’m not sure I am on board with all of my fellow
narcoleptics. I’ve seen how upset they’ve gotten over the recent Modern Family
episode that talked about narcolepsy and then the Black Box episode. I get it,
it sucks that a show aired to millions of people and got Narcolepsy “wrong” or
misinterpreted the sleep disorder. But are we all really that negative these
days? I mean narcolepsy was aired on popular shows that spiked awareness of it
even being a condition in the first place. Can we not see the good in it; we at
least got past the ever so famous “rat race” interpretation. </div>
<div class="MsoNormal">
I just feel like the narcolepsy community needs to take this
opportunity to educate people who talk about the episode and say, “Hey no it’s
not exactly like that, this is how it is”. Don’t like talking about the
condition or don’t like educating people about it? Then sit back and watch it
get misinterpreted. You can’t be upset about something you’re not willing to change…and
getting upset and mad is a waste of energy that won't change peoples opinions about Narcolepsy.</div>
<div class="MsoNormal">
It’s like the Facebook forums where we are suppose to get
support…if you take it all seriously damn rights you’re going to be depressed
and get thinking it’s the end of your life. But you have to see the good in it
all, people post what works for them and that may not be what works for you.
Flip side it could be the ultimate game changer and improve your quality of
life. Everyone’s narcolepsy is different, it’s not even fully understood. So
why do we sit here and get upset about misinterpretations when these
misinterpretations are allowing us to educate and change point of views.</div>
<div class="MsoNormal">
We are not the ONLY people who have an illness that has
misconceptions…there are plenty out there and ultimately they all had to start
somewhere too. </div>
<div class="MsoNormal">
I understand the negative comments, the negative feedback,
the person who thinks they have got the cure are all discouraging. People suck,
people aren’t perfect and that’s the bottom line. Narcolepsy is going to be
misinterpreted at times and it’s going to be dispiriting but I think we just
need to take the time to be positive. If you’re letting people get you down and
you’re fuming over these interpretations then you’re wasting your energy. Take
that energy and put it towards telling someone what it’s really like, educating
someone who wants to be educated. Ultimately at the end of the day, no one is
going to “get” it or completely understand it unless they have it. You can bet
the people who wanted to educate themselves on the condition hit up the Internet
after the episodes and got a dose of what it potentially could be like. As for
the others who laughed it off or think it’s stress related… let them think
that. When someone wants to learn they ask or research and they have an open
mind. Let the close-minded people be close-minded…they aren’t worth your time. </div>
<div class="MsoNormal">
Of course with the post…I’ll say this is just my opinion. My
humble opinion on how negative society as a whole is these days. I may not post
much these days, I may not comment on much in blogs, facebook or twitter…I do
read it all though. I read it all and I don't let it alter my outlook or alter who I tell about narcolepsy.</div>
<div class="MsoNormal">
Stay positive people, and start taking these moments and
turning them into opportunities not bitterness. The more we focus on the bad
the more bad we will see… and I’ll leave it at that. </div>
<!--EndFragment-->Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-40451050066323635132014-03-10T21:46:00.001-07:002014-03-10T21:46:10.260-07:00It's OK to be Grumpy;
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Just a few more weeks of this crazy work schedule and I’ll
be curled up in a ball on the couch, in my mom’s bed or at my boyfriend’s
doorstep sobbing about narcolepsy and how frustrating it is trying to be a
normal functioning human being. But is this life I’m living normal for a human
being? Most would say probably not. Now how bout we look at the issue of money;
the cost of living on your own, food expenses, owning a car, and the general
fact that living is fucking expensive. How does one ever expect me to move out
again from my parents place? They can’t possibly expect me to work sane hours
and be able to live like I’m not dying or not fearing the next time I’ll fall
asleep at the wheel. They just can’t have these silly irrational expectations
of me; the girl who is supposed to nap daily…how is she to ever work enough to
financially support her own self and be happy.</div>
<div class="MsoNormal">
Balance; yes I’ve heard it plenty lately. You need to find
the balance between work aka money and your health, your life and your general
happiness. You know what? I think it’s a lie when you’re young and starting
out, and a lie when you’re narcoleptic. I’m both of these things, young and
narcoleptic and I have a theory that I can only pick TWO of these options. It
was happiness and health these past 3-4 months. However my bank account is
screaming at me and my ambitions of seeing the world and achieving the big
dreams I have are slowly becoming unrealistic because I simply have money to
pay for my car insurance, the gas that goes in it and the rent that I pay my
parents to keep a roof over my head. Now with a second job, technically a third
if you count my self-employed photography as a job…I am questioning which two
options I’ll be picking. Work is the one option; now do I pick health or happiness?
But in all seriousness…how does one stay happy with no social life and how does
one stay healthy if I choose to have a social life? I work so much or at odd
hours in comparison to my friends…therefore I rarely see them and it’s a lack
of quality time. I just want all the answers and I want the answers to be
simple. I just want to fast forward 2-3 years from now when I hopefully am
using my Photography as a MAIN source of income. It is then that I truly
believe I’ll be able to pick all three options. Work won’t be work, it will
just be money from doing something that is contributing to my general
happiness. </div>
<div class="MsoNormal">
As for all you normal non-narcoleptics reading this…I get
it. 43-hour workweek ain’t shit for you and your perfect health living off no
sleep. I’m glad that your biggest worry when you sleep for 4 hours is the bags
you’ll have under your eyes the next day. Good for you, I’m actually jealous of
you…much like you are jealous of my “convenient” excuse for napping. </div>
<div class="MsoNormal">
Lets see how miserable this 43-hour work week can make me.
And to answer your question…yes…yes I am being a bitter negative Nancy
currently. And no…no I am not trying to be rude…I’m simply expressing how I
feel to prolong the fetal position and tears that are to come in the following
weeks. </div>
<!--EndFragment-->Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com1tag:blogger.com,1999:blog-8113971926857900447.post-76904445494424756812014-01-24T15:27:00.000-08:002014-01-24T15:27:12.151-08:00Happy New Year & All That Jazz
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<br />
<div class="MsoNormal">
It’s that time…I owe everyone a blog update and I owe myself
the tranquillity that the writing brings me. </div>
<div class="MsoNormal">
Things have changed since I last blogged, but my life is
always changing and that’s why I love it! My photography is still slow going
and will be a continual work in progress, however I have met up with a Wedding
and Event Planner! It was a great coffee date that went in nothing but the
right direction; we will be working together this year on building both of our
portfolios! I am super excited and although it might be work that’s not paid…it
will one day all pay off! </div>
<div class="MsoNormal">
I am still working in retail at the children’s clothing
store Ivivva and honestly love my job there. The company is really inspiring on
the basis of goal setting and maintaining a healthy lifestyle. I’ve always had
goals in the back of my mind…but writing them down, showing the world what they
are, and making a “by when” finish date makes the goal seem more achievable.
I’ve got some goals I’m aiming to complete in 2014; I will share one from each
category personal, career, and health!</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Personal: Scuba Diving Certification by August 2014</div>
<div class="MsoNormal">
Career: Shoot one Wedding as the main photographer or second
photographer by December 2014</div>
<div class="MsoNormal">
Health: Have my percentage of body fat at or below 20% by
July 2014</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
My only complaint is since Christmas I haven’t been getting
enough hours. This one complaint has me on the lookout for another job, one
that’s flexible!</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Recently I was in Hawaii with a friend from College…She
conveniently decided to run her first marathon in Maui. Also convenient that
she had no one tagging along for the adventure! I gladly stepped up to the
plate and so happy I did. I had an amazing time in an absolutely gorgeous
place. If you haven’t been I highly suggest you put Maui on the list. It’s
incredible and warm and perfect and I want to be back there!! We got to go
surfing, snorkeling and kayaking. I have a soft spot for surfing, I find it
incredibly fun and have now been three times…and can’t wait to go again. I
hadn’t been kayaking before so I found it fun and the spots we stopped to
snorkel were neat! I swam with some turtles, literally could have touched them
if that wasn’t frowned upon! We also lucked out completely and had the luxury
of being present to a baby humpback whale and it’s “playtime”. I couldn’t
believe it, probably 20 feet away from us out popped a baby whale slapping in
the water, twisting, turning and just having a grand time. You could see the
shadows of mom and dad under us…absolutely massive animals. It was impressive and
truly a unique experience! I’m a little sad I am already back home in the cold,
but these trips are the ones that give me the motivation to save my money for
more travelling! </div>
<div class="MsoNormal">
My life is full of workouts these days as I try to lean out
and build upper body strength. Since summer I have lost about 20 pounds and
feel better about myself and happier in general. I have a great friend who
works out with me 6 days a week at the Universities gym. It’s a huge help to
have someone to go to the gym with, it’s motivation to finish the workouts and
to stay on track. My social life is rather boring, everyone is back in school
and broke…actually we’ve always been broke we just pretend we have money during
winter break and the occasional weekend. Funny enough on one of those “pretending
to have money” weekends back in October I ended up meeting a guy I am now
dating. Turns out boys don’t have cooties; a lie I was told in kindergarten
only to find out at age 20 that some guys are pretty all right. My dog seems to
like him and he’s been rather kind to me so I’ll keep him until given reason
otherwise. Haha. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
In the world of narcolepsy and meds…</div>
<div class="MsoNormal">
Slowly but surely cataplexy has entered back into my life,
nothing of the collapsing sort or the disabling type. Just the face weakness I
remember from high school. It could be from the simple fact that I find myself
and my friends to be hilarious… or the actual and pure fact that I am tired. It
never seems to happen in the day, but usually at night and late and it’s
usually from reading a ridiculous text from a friend, joking around with
someone or just plain funny things. It’s almost as if I go to giggle and laugh that
my face lacks control and causes me to frown. It’s like cataplexy hates
laughter or seeing you happy and it’s got to let you know…either way it’s not
debilitating or anything and I am perfectly fine.</div>
<div class="MsoNormal">
I did however get a new prescription yesterday. I’ve always
taken 54mg of Concerta…occasionally I’ll take 72 mg or low doses like 18mg on
days of naps and no driving. It’s been working but I’ve been also feeling like
I don’t realise that I need the 72mg until it’s too late in the day. Since
Concerta is 12 hour medication I can’t really take it past 10:30. It’s been
between 12-4 that I’ve noticed “I might not make it to the end of the day”.
Medicating with Caffeine isn’t ideal because of the crash I feel after and the
broken sleep it causes on an already broken enough sleep. All this being said
my doctor has prescribed me the regular short acting Ritalin. Just the low dose
of 5mg…hoping it helps and I am able to make good use of it on the days where I
am struggling at noon! Will keep you posted on this in future!</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Last but certainly not least I wanted to introduce a new
blog I have found. It’s just up and running recently and I’m inspired and happy
to see a young narcoleptic taking the time to blog. His family is helping him;
clearly doing a great job at supporting him with school and extra activities.
Normal is all we want in our lives, especially when we are young and trying to
fit in. I wish him nothing but the best in his journey and look forward to reading
the blog! </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<a href="http://www.narcolepsykid.com/">http://www.narcolepsykid.com/</a></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Enjoy your day!</div>
<div class="MsoNormal">
<br /></div>
<!--EndFragment-->Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com2tag:blogger.com,1999:blog-8113971926857900447.post-25290618694112637002013-12-06T22:02:00.000-08:002013-12-06T22:02:35.751-08:00Life's not good it's great;
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<br />
<div class="MsoNormal">
I don’t know where to start; honestly I am so grateful and
humbled by the people who have emailed me both recently and in the past. This
blog was never intended to be anything more than sharing my experiences as a
narcoleptic. My life is above average for a narcoleptic, and I’m happy that
this life of mine is inspiring the life of others. I honestly figured that most
people who read it would be my friends, family members and past teachers. To
see how far its gone in 3 years boggles my mind, to see how many people view my
blog monthly astonishes me. I feel whole when I write this blog and I feel uplifted
and ecstatic that I have inspired, motivated or given hope to people around the
world. Truthfully your emails encourage me to be a better person, motivate me
to write more and give me faith that the future of narcoleptics is positive. So
for that I thank you, you all are wonderful people and I hope in the near
future I am able to make it to a Narcolepsy Conference to meet you all. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
My life is looking pretty promising from where I am sitting.
If you’ve followed along on my blog for a while or know me personally you’ll
have known I went to school for photography. You also may have realised that
since college I’ve done next to nothing in the photography world. It was kind
of unintentionally intentional. I think taking a year and a bit off was one the
best decisions I made. I know my parents wanted me to or at least questioned
why I didn’t dive right into my career and start a business. However for me, I
think I would have gave up on it within the first month. There was moments I
even questioned if photography was where I wanted a career; I think it was just
the simple fact that I don’t like being told what to do and school was a lot of
that! ;) </div>
<div class="MsoNormal">
I realised that it’s not like I was sick of photography, but
I was sick of having people to please and my crafts being what pleased
everyone. I love photography, I get a real joy out of creating images and
peoples reactions to them…however after school I had had enough of the go go go
and needed some slow down and breath time. Quite frankly it’s been really good
for me, I’ve been able to focus on other things, and now realign my heart into
photography. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
With my heart back in it I’ve decided to invest my energy
and time into my career. I realise it’s going to take a few years to be where I
want, perhaps even longer. However the longer I wait to start, the longer it
will take to get where I want to be. Ultimately I want to be making a living
off my photography; the end goal would be solely working as a photographer. It
will take a while, but I do believe in myself and I do think talent will
overcome the obstacle of everyone being a “photographer” these days. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I’ve had a few shoots in the recent months, family, couples,
maternity and a shoot with a friend and her horses. It’s been really fun and
I’ve learned from each shoot. I don’t claim to know everything about
photography; yes I went to school but I’ll always be learning or finding new
ways of doing things. I’m basically just working towards expanding my art and
getting my name out and work out there. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
My mom gave me some of the best advice the other night. “You
will attract the kind of clients you want by doing what you love”. My mom was a
dog breeder for years, a well established one and never once did she advertise;
people who were wanting what she had to offer came looking for her and her
boxers. She didn’t have to advertise and her clients all appreciated what she
did and were always loyal. It’s sometimes hard to understand that logic, but I
don’t want to be a photographer for someone once. I want the customers that
come back for each milestone; the clients who rave about me to friends and the people
that seek me out. One day I’ll be there, for now I will continue to put in the
work. I will continue to love my job and let that love for my job do the work. </div>
<div class="MsoNormal">
If you have facebook please like my photography page; it would be a huge help. </div>
<div class="MsoNormal">
<a href="http://www.facebook.com/SarahBeauPhotography" target="_blank">www.facebook.com/SarahBeauPhotography</a></div>
<div class="MsoNormal">
You can also visit my website; check the blog for recent photo shoots!</div>
<div class="MsoNormal">
<a href="http://www.sarahbeauphotography.com/" target="_blank">www.sarahbeauphotography.com</a></div>
<div class="MsoNormal">
Thank you so much! </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Happy Holidays to everyone!</div>
<!--EndFragment-->Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com1tag:blogger.com,1999:blog-8113971926857900447.post-1633677608509786352013-11-14T20:07:00.000-08:002013-11-14T20:07:08.419-08:00Finally Ready to Talk About It;
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<br />
<div class="MsoNormal" style="text-indent: 36.0pt;">
I quit working for Lifetouch. The
early mornings, the stressful days, the amount of lifting and dragging around
equipment really took a toll on my narcolepsy. I ended up falling asleep at the
wheel a month and a bit ago. I didn’t blog about it mainly because I was
embarrassed, ashamed and down right mad at myself. I take pride in how
responsible I am and how well I know my narcolepsy and myself. Falling asleep
at the wheel scared me, and honestly made me question my integrity. </div>
<div class="MsoNormal" style="text-indent: 36.0pt;">
It happened on a Thursday. I was
driving to work at 5:45am and I was tired, and next thing you know I am at my
destination. I micro slept and that was bad. After the workday ended at
Lifetouch, it was time to pack up and go straight to pick up the kids I nanny. Next
thing you know I am slamming my breaks at a four way stop, just a big enough
jolt to wake me out of the micro sleep. How did I get here, how long have I
been asleep, what do I remember last? I was pissed, upset and confused. I
always sense my sleepiness; I always know when to pull over. How could I have
not sensed it and let it get this bad? I immediately flashed back to being 14
years old and waking up in random spots, random positions and thinking what the
hell is wrong with me. The worst feeling in the world for me is honestly age 14.
That was the most embarrassing, awkward and frustrating year of my life. I am
now 20 and to feel that way again just feels worthless. It was just plain unpleasant.
I got the kids, put them in the car and took them to swimming. I dropped them
off to swim, and I now had 45 minutes to actually collect my thoughts and think
about what I had done. I wasn’t ready to face my parents, I didn’t know if they
would be mad, upset, disappointed or how they would react. I called my brother
balling my eyes out like a baby. I am beyond thankful for my brother, never
once has he let me down in any of my times of need. Never once has he judged me
on my narcolepsy and he has always been the matter-of-fact guy. He calmed me
down, asked me realistic questions. “What can we do to help your sleepiness”,
“Has this happened before”, “Do you think it’s because of stress or lack of
sleep”. Charlie really has a way of being straightforward to finding a solution
and making me feel like I wasn’t an awful person for what I had done. After the
conversation I didn’t have an actual solution, however I felt better, I had
options and things to think about. Ultimately I decided that my job needed to
be given two weeks notice and I needed to find a balance in my health. I love
my sense of independence and no job or amount of money should jeopardize my
license or the safety of others on the road. </div>
<div class="MsoNormal" style="text-indent: 36.0pt;">
From then on I told my parents
and while I am not shocked at their response now…I was shocked when I heard
their reaction in the moment. I don’t know why I feared telling my parents; I
think it was due to the simple fact that I was mad at myself so how could my
parents not be mad at me? Either way my mom felt bad for me; she said, “Well I
am honestly not surprised. You have been busy and stressed and doing a lot”.<span style="mso-spacerun: yes;"> </span>She felt bad for me, she understood all
the things I wanted to be able to do, gave me some tips, reminded me I don’t
have to be working as much as I have been. In a round about way she made me
realize that all the stresses I have are not because of life, but simply because
I chose to take on certain roles. </div>
<div class="MsoNormal" style="text-indent: 36.0pt;">
My fathers’ reaction was the “Oh
shit”. The “that’s no good, tell me the story” kind of reaction. However his
response that did make me feel better was that half the population who are
without narcolepsy have probably fallen asleep at the wheel. He told me the
stories of him back when he was driving trucks for different companies and how
he’s ended up in the ditch. Hearing that normal people do it made me feel
surprisingly better.</div>
<div class="MsoNormal" style="text-indent: 36.0pt;">
Ultimately I decided to quit,
alleviate the stress factor, the early mornings and the long days. In the end I
haven’t regretted the decision and I have realize things from it all. It
happened, and yes it was bad and I wish I could go back and change my lifestyle
prior to the event. However I have re-learned a valuable lesson about my
narcolepsy. I have complete control over my life until I decide to give up
control. For a brief while I gave up my control on my narcolepsy; I decided I
could work early mornings, late afternoons and coach soccer in the evening when
in actual fact I couldn’t and shouldn’t. Money is nice, but health is nicer. </div>
<div class="MsoNormal" style="text-indent: 36.0pt;">
I am happy with my current life. My
new job in retail is full of fun and a positive work environment. I’m cheerful
and my cheerfulness is being reflected in how well my narcolepsy is treating me
these days. </div>
<div class="MsoNormal" style="text-indent: 36.0pt;">
<br /></div>
<div class="MsoNormal" style="text-indent: 36.0pt;">
xx</div>
<!--EndFragment-->Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com2tag:blogger.com,1999:blog-8113971926857900447.post-20391992241170738222013-11-04T20:32:00.002-08:002013-11-04T20:32:50.166-08:00Dear Diagnosis Blogathon<br />
<div class="MsoNormal">
<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
Dear Sarah,</div>
</div>
<div class="MsoNormal">
<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
<br /></div>
</div>
<div class="MsoNormal" style="text-indent: 36pt;">
<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
All right yes I agree we need to change doctors this guy is a little to excited about having “found” me and rather excited to be around someone with “Narcolepsy”. Thankfully diagnosis day only lasts 24 hours and we can work towards finding a different doctor soon. Hang in there, I know you are not nearly as excited or feeling any of the same emotions as this guy breaking the news.</div>
</div>
<div class="MsoNormal" style="text-indent: 36pt;">
<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
<br /></div>
</div>
<div class="MsoNormal" style="text-indent: 36pt;">
<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
Stop and breath, that feeling you can’t identify…that’s relief. I know you feared having nothing wrong with you, or having nothing show up from the study, but here you are with the dreaded diagnosis and a sense of relief. You aren’t crazy, you aren’t losing your mind and you actually do have something wrong. Yes I know it’s an illness, it’s not curable yet, but hey knowing you have Narcolepsy at just age 14 is a blessing in disguise. The knowledge and diagnosis has arrived; it’s up to you now as to what you do with that awareness.</div>
</div>
<div class="MsoNormal">
<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
<br /></div>
</div>
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<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
I wish I could be there to walk you through the transitions and changes you are about to face. Your parents; don’t fight them, those annoying nap suggestions and bed time reminders are because they have your health in their best interest. Trust me they realize how old you are; they don’t like reminding you anymore than you like hearing it. Friends will walk out of your life, but hang on tight because in time you will find amazing friends to lift your spirits and embrace your toughest days.</div>
</div>
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<br /></div>
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Don’t fight your narcolepsy; don’t pretend you don’t have it. Be honest with yourself and be responsible. You’re responsible for your health, so when you start that head bob, girl just give in and go find a couch, a bed, or the back seat of a car. The better friends you are with narcolepsy the nicer she is. She can be a real “B” word when you cross her the wrong way. Watch out for those famously fun and dysfunctional all nighters with your friends; watch out for that sugar high that comes with the crash. Narcolepsy will take your temporary fun and missed naps and take you down with her. Watch your back, she’s been known to stab.</div>
</div>
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If you take anything away from this letter I want you to take away the simple and utmost important thing in life…don’t let anyone or anything stop you from chasing your dreams and living your best life. Don’t let this Narcolepsy or Cataplexy in still a fear to live life courageous and daring just like you always have. Let that bold personality you have guide the way, make sure you don’t start believing what you read. All this “I can’t because I have narcolepsy” is the biggest load of $%#! you will hear.</div>
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<br /></div>
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<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
You, Sarah are about to embark on a life changing journey that will mature you, strengthen you and shape you as a person. Take it one day at a time, take it with ease and let people in. Take this time to educate, inspire and change the way the world looks at narcolepsy. Change your world, change your life and you might just change someone else’s.</div>
</div>
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<br /></div>
</div>
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<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
Love and Naps,</div>
</div>
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<br /></div>
</div>
<div class="MsoNormal">
<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
Sarah xx</div>
</div>
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<br /></div>
</div>
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<br /></div>
</div>
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<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">
Thank you to <a href="http://julieflygare.com/dear-diagnosis-blogathon/" target="_blank">Julie Flygare</a> for this wonderful idea. The reflection of how far I've come and the realization of the gains in the narcolepsy community since 2007 was empowering and uplifting. </div>
</div>
Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com6tag:blogger.com,1999:blog-8113971926857900447.post-84043194027107905172013-10-06T14:25:00.002-07:002013-10-06T14:25:12.022-07:00Working for a Living Sucks;
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Hopefully the girls will understand this analogy, guys…bare
with me. You know when you are so busy and you finally get in front of the
mirror all up close and you see your eyebrows and you’re instantly appalled at
how you let them get that out of control? Well that’s how I feel about my blog.
I last posted on my birthday August 31, which was kind of a while ago. It’s not
like I haven’t had things to blog about, or things to talk about. I’ve just
been too busy when I want to write and too tired when I find time to write. </div>
<div class="MsoNormal">
Life’s kind of been a rollercoaster of long days, stressful
days and an overall longing for the end of my jobs to come. December cannot
come soon enough, my body needs a break and the weekends just simply aren’t
enough. I’ve calculated that between working with Lifetouch as a photographer,
the kids as a Nanny and now volunteer coaching a girls soccer team I am working
between 45-55 hours a week. Monday to Friday sucks, I wake up to early and go
to bed too late. 9:30om is my attempted bedtime in order for 5:30 am to be a
somewhat nice Sarah…not the usual grumpy early morning Sarah. However with
coaching, life and being 20 I can’t always make 9:30 perfectly. I’ve been sick with
a sore throat plenty, and well who do I have to blame? Myself, for probably
pushing my body more than it should be. I can’t complain I suppose, I have to
make money somehow and I have been told I can’t live under my parent’s roof
forever. I’m in need of finding a rich man to sweep me off my feet. I wish I were
kidding. </div>
<div class="MsoNormal">
I think I’ve been frustrated lately with my Narcolepsy. I
always had this mutual understanding with it, and I was nice to my narcolepsy
to get the most out of my days. Lately though, I’ve been thinking “Ok, I know I
need sleep, but how am I suppose to balance sleep and working for a living?”
This to me is an issue, a frustration and just a viscous circle. One day I’ll
have the money to start my own business, buy all the equipment I need to be a
photographer. In the mean time though how do I buy the necessities, save for
things, and find time to continue building a portfolio? They say if you want
something you’ll find a way, however I am sure that person didn’t have
narcolepsy and probably could live or function off 5 hours sleep. </div>
<div class="MsoNormal">
When December comes around, I am not sure what I will do, my
contracts for my jobs are up and I have little desire to continue either of
them. I guess I need to find an extremely well paying job, that is fast paced
enough where I don’t get sleepy. 40 hours a week sounds easy to me right now, I’m
just not sure where I can find a job that pays like I need it to in order to
afford or do all the things I want to. I also have to take into consideration
that I am only 20, I have tons of time to figure things out, I’m just thinking the
future of working looks pretty gloomy at this stage. I need to find that
balance so that I can stay healthy, and happy. </div>
<div class="MsoNormal">
In other news, coaching is going well. The girls are great,
and the parents are finally a group of parents that understand competitive
sports, and want the best for their kids. Yes I am sure their will be the odd
helicopter parent, however for right now…I am ecstatic to just be able to show
up at practice and coach. Assistant coaching is a good fit for my current life.
I don’t have to make decisions on tournaments, managing, money spent, food,
etc. All I have to do is help the girls improve their soccer skills. It’s ideal
in my current life; maybe in future I will try to head coach again.</div>
<div class="MsoNormal">
Anyways, I best start packing my bags for the week, planning
meals for the week and finishing laundry! </div>
<div class="MsoNormal">
Ciao.</div>
<!--EndFragment-->Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-91388934744075502432013-08-31T12:50:00.000-07:002013-08-31T12:50:55.752-07:00Unite Narcolepsy<a href="http://julieflygare.com/about/" target="_blank">Julie Flygare</a> has been a huge advocate and voice for Narcolepsy over the years, every time I check her blog she is always up to something exciting. Whether she's writing a book, running a marathon, or working towards helping the FDA understand narcolepsy she's constantly striving to better the lives of Narcoleptics. If you do not follow her blog and you are affected by Narcolepsy or interested in Narcolepsy I don't just strongly suggest...I insist you head over to her site and subscribe to her or at least bookmark it. You'll be constantly inspired by all she does, all she is and how much she truly lives her life to the fullest.<br />
<br />
<a href="http://julieflygare.com/rem-runner-blog/" target="_blank"><b>Julie Flygare: REM Runner Blog</b></a><br />
<br />
She recently contacted me about a survey and spreading the word about an upcoming meeting help by FDA that was focused on further understanding Narcolepsy Patients. The survey, the meetings, and the more we spread the word the better chance we have at properly educating the FDA. With such a large blogging community I was hoping that a few of you could take the time to take a survey. The survey takes about 15-20 minutes and is for people with narcolepsy, people who know someone with narcolepsy, and of course people who are simply affected by narcolepsy. It's an opportunity for everyone to share their struggles, their victories and all that comes with naroclepsy. Narcolepsy is different for everyone and not one medication, schedule or lifestyle is the answer. With the help of our community coming together we can open doors for ourselves and create a brighter future.<br />
Julie has written a blog that I have attached below which has more information than I could ever provide; go ahead and read more and please please please take the survey(also linked below).<br />
<br />
<div style="text-align: center;">
<a href="http://julieflygare.com/fda-narcolepsy-survey/" target="_blank"><b>Julie's Blog regarding all you can do to ensure your voice is represented!</b></a></div>
<div style="text-align: center;">
<a href="https://www.surveymonkey.com/s/unitenarcolepsy" target="_blank"><b>Survey</b></a></div>
<div style="text-align: center;">
<a href="http://julieflygare.com/wp-content/uploads/2013/08/Unite-Narcolepsy-FAQs.pdf" target="_blank"><b>Link for Questions & Answers</b></a></div>
<br />
Thank you for reading and thank you in advance for your participation. The narcolepsy community thanks you.<br />
<br />
<br />Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-52027150341371357382013-08-11T16:14:00.003-07:002013-08-11T16:16:41.069-07:00Step in the Right Direction;<!--[if gte mso 9]><xml>
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<br />
<div class="MsoNormal">
A lot has changed since I wrote that last blog, all
changes for the better. I am finding myself to be in a really happy place. I
wasn’t miserable or anything prior however this past month has been exciting
and steps in the right direction.</div>
<div class="MsoNormal">
I want to travel and would love to be traveling this
September however I applied for a photography position with Life Touch on a
whim and ended up with a new job. At first I was hesitant and wondered if I
really wanted the job however it’s time I start working in my field and
profession. The job isn’t perfect and I am taking 1250+ pictures of students in
the same pose a week…however it’s the experience and the atmosphere of working
around other artists/photographers that will be delightful! I started the
training last Thursday and have one week left of that before we get to working
in the schools and doing all the School Portraits! Two things I love all
wrapped into one; working with kids and snapping pictures!</div>
<div class="MsoNormal">
The job allows me to stay working with the family I have
been a nanny for! The kids are in school full time starting September and won’t
need me for full days anymore. I have chosen to continue on with them in the Fall
with only working about 20 hours a week. I have surprised myself with how
attached I have become to the kids. These two kids have changed my viewpoint on
a lot of things and have really tested my level of patience. I see the
positives of me being there for them and I have seen the changes in their
behaviors and general happiness. I don’t think it’s fair to walk into a young
child’s life and be such a big part only to walk away within six months.
Therefore I will stay till December and then reevaluate. Whatever I do choose,
I know I will try my best to keep in touch with the family as the years go by. </div>
<div class="MsoNormal">
The family is on Vacation for the month of August therefore
I have been pretty worry free up until last Thursday when I got the photography
job. It was an absolute pleasure to sleep in past 6:30am. I have found since
working such long/early days that I can no longer stay in bed till noon;
10:30am is about as late as it gets! </div>
<div class="MsoNormal">
This upcoming month my brother is moving in with his
girlfriend on more official terms. He has been living with his girlfriend in
his girlfriends parents house, but now have found a townhouse together to
officially move out. I have found his past living arrangements to be hilarious,
more than odd… and too easy. I believe his gf’s mom does a bit too much for the
two of them in terms of running a household. It should be interesting watching
my brother adjusting to cooking, cleaning and doing all the household chores with
his gf! Some entertainment for his sister! I have done a house-warming gift of
a picture I took, printed on canvas. I also did a photo shoot with them last
week and will share a few on this post!</div>
<div class="MsoNormal">
Most of you know I coached a soccer team this past outdoor
and quite enjoyed myself. You also might know that I found at times it to be
difficult to enjoy due to parents. This fall/indoor season I have the
opportunity to continue on and do it again. I’m kind of caught in a tight
place; my head and my heart are having a tough time rationalizing what it is I
should do. I love working with the kids, I love seeing them grow and develop as
players and I also love the satisfaction it brings me. However these past four
months were hard on my health. I was stressed out, emotional and often times
just angry or annoyed. It was rarely due to the kids, it was always due to the
parents. I think that’s why I am having trouble deciding. I want to do it for
the kids, but for the amount of time and energy and volunteering it is…I have
to ask is it really worth it? It’s a longer commitment for indoor and I would
hate to commit and then have to leave because I end up losing my mind. I just
don’t want to be letting anyone down, don’t want to let down the kids or myself
I suppose. I guess I really just need to have talk with myself and decide
what’s more important in my life right now. The kids mean the world to me, I
don’t want to quit and have kids thinking I am quitting on them. I will be
sitting down with the club director and seeing about options or changes that
could be done to help ease my volunteering. At the end of the day it’s not paid
time, it’s volunteering. </div>
<div class="MsoNormal">
I am off for a slow pitch game with a bunch of friends, then
home to bed so I can get a good nights sleep before work early tomorrow.</div>
<div class="MsoNormal">
Wishing you all a wonderful rest of your summer!<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
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<br /></div>
<!--EndFragment-->Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com0tag:blogger.com,1999:blog-8113971926857900447.post-35486058923965152082013-05-10T22:44:00.000-07:002013-05-10T22:44:08.382-07:00updates far and few between;<!--[if gte mso 9]><xml>
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Wow. Has it been a while or what? I would really love to be
able to update you day by day with my life status, my coping mechanisms but my
life is so damn busy lately. I am currently on a 5 day weekend since the family
I nanny for went to Vancouver to visit grandparents. All I can say is THANK THE
LORD. I need this weekend to sleep, to remain sane and get some personal
appointments out of the way. </div>
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To update you on my schedule and why I feel so damn busy; I
am still a nanny Monday to Friday generally working 11-6 now. I am head coach
of an Under 12 girl’s soccer team. We practice Wednesday, Friday and have a
game about 2 times a week usually Monday/Saturday. I also play soccer and my
team has been playing Saturdays and Tuesdays but will soon move into a consistent
Thursday night game. It’s busy and I hardly have time for myself anymore. I
don’t nap during the week; I just push through the day. I have a tea everyday
and that is my source of caffeine on top of the 54mg of Concerta. I stay active
the entire day, either I am watching the kids at the park, cleaning the house,
doing laundry or taking the kids to activities. The constant activities keep my
mind running and I don’t even think about naps. I find the toughest days to be
the ones where I have too much down time. Where there is not a ton of cleaning,
and the five-year-old wants to play by her lonesome. </div>
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Either way I am getting through the days and maintaining a
more than normal life. Sometimes I think I am doing more than a person without
narcolepsy! I originally was terrified for summer and working because the kids
would be out of school and 8-5 would become my new hours. HOWEVER, the family
asked me the other day if I would be ok getting the kids at noon everyday from
summer camps then hanging out with them till 6pm. Hell yes! I am more than okay
with this, this means my hours stay practically the same and I can keep up with
this schedule! There will be one week here and another week there where I am
required to work 8-5, but I can mentally prepare for those weeks in advance!</div>
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In other news with my days off I am taking my days off to
get my prescriptions refilled, my cars oil changed, my many errands out of the
way, and of course to sleep. Saturday and Sunday I however am locked up in a
classroom 10-5 learning new coaching skills. Although I am excited to take the
coach, all narcoleptics know the fear that comes with sitting and listening to
an instructor. Wish me luck! </div>
<!--EndFragment-->Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com1tag:blogger.com,1999:blog-8113971926857900447.post-31130748978095397492013-04-01T20:39:00.000-07:002013-04-01T20:39:31.325-07:00I think I am funny;Well about a month ago I got a little tribute tattoo to myself. It's a simple little tattoo that has a significant amount of meaning behind it. It basically is a tattoo to acknowledge my success in life while living with narcolepsy, the challenges and the barriers I have overcome. It's a reminder of the good, the bad and the hilarious times that have come because of my narcolepsy. I am happy with where I am in life, what I have managed to accomplish, who I have managed to help and overall where I am headed with my future. I know I haven't beat narcolepsy but I like to think I have a mutual respect with my narcolepsy like they say..."keeps your friends close and your enemies closer". ;)<br />
Feel free to laugh at my tattoo; I do. My friends describe it as perfect and very fitting... so I thought I would share with the narcoleptic world.<br />
Have a good month.<br />
<br />
<br />
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p.s I realize this is posted on "April Fools"...it's real i promise. :)Sarah Beaulieuhttp://www.blogger.com/profile/09668209839749671225noreply@blogger.com1