To anyone without narcolepsy who reads this my days of
working a measly 6 hours probably sounds super easy and much of “living the
dream”…to everyone who has narcolepsy you will understand my struggles.
I love being a nanny, absolutely adore the family I work for
and all the fun activities I get to do each day. However working 6 hours
straight with no break is a bit of a challenge. My day starts at 11:00am when I
pick up the 5 year old at Kindergarten. We head home, eat some lunch and play
whatever games she wants. We do crafts, we run around, we clean the house (I clean
the house), and then we walk to the bus stop at 3:45pm to pick up her 7-year-old
brother. From then on we have a snack, do some more crafts, they usually get in
a fight, I break up the fight and then Mom or Dad gets home at 5:00pm. Those 6
hours exhaust me, I am absolutely drained at the end of it all yet I get in my
car and scurry off to the gym. I work out for 1-2 hours, head home and eat some
food. I then sit on the couch, or curled up in bed and go to sleep to do it all
over again. Since it is February and there is a holiday here in Canada they
have been having days off of school, those are the worst days. I wake up at
7:00am I leave by 7:45am and start work at 8:00am, and then I stay awake
entertaining the kids until 5:00pm. Nine-hour days were never meant for
narcoleptics but somehow someway I have been making it work. Eight hours seems
more reasonable, I might have to bargain with the parents come summer time. Anyways,
that is an update on what my life is looking like.
I also just had a surgery that I had been waiting on for
years, literally years. I have broken my nose 5+ times and have neglected the
fact that I have a deviated septum. I kind of had gotten use to the blocked
airways and always breathing through my mouth. Not anymore, say hello to having
open airways. It was minor surgery but it required me to be on bed rest for one
week, no activities, no lifting anything over 10 pounds. It was nice at first,
but boring after a while. Now I am just on week two of recovery but I can
already notice a huge improvement. Hopefully in another week I will be able to
test it out at the gym. I am extremely curious if I will get gassed (out of
breath) as quickly as I usually do. Only time will tell!
In other news my life is rather uneventful as I work towards
saving my pennies to both travel and possibly go back to school in 2014. I am
looking forward to the next few months; many exciting events and experiences. I
have been working with a U12 Girls Soccer team which is full of fun, interesting
conversations and of course my favorite thing…Soccer. They are all really
talented players and genuinely want to be there…which is always a bonus as an
assistant coach. Come outdoor there is a chance I will be taking a larger role
in coaching which to me is really quite exciting. I hadn’t thought I would
enjoy coaching this much, but these kids make it fun for me to share my wealth
of knowledge. Tomorrow I am off to a soccer tournament with them. I am sure it
will bring back memories of a few of my first “away from home” soccer
tournaments.
Come March things will be busy; I have joined a boot camp
that is three times a week at 9am. It’s close to where I work so it is convenient
for me to scurry off to work after. My U12’s also have an away tournament one
weekend provided they continue to win games. I also have a women’s team that I play
for and we will be away for a weekend in March. On top of this all my best
friend from Minnesota (where I went to college) is coming for a 5-day visit. We
have jam packed the mountains, the bars, and an NHL game into our schedule. I
am extremely excited to have her come visit me; it should be one wild
adventure!
I believe that is all for now, I am off to pack for the
weekend and finish up a few other things I have managed to procrastinate.
Hopefully I will find time to start blogging more rather
than having to write one big blog with one giant update every month!
Cheers.
Have a wonderful weekend.
Hello, I have just found you. I started blogging in January out of frustration with my Narcolepsy, among other health struggles in my house. I have to say, you don't give yourself enough credit. While my Narcolepsy diagnosis is new, 7 months to be exact, I have known something was wrong for a very long time. I could never do as much as you are doing in a day! I aspire to be this active... someday soon I pray!
ReplyDeleteHi, hope all is well with you. I really don't give myself enough credit, so thank you I appreciate your comment. I know I have found the right balance, and although some days are a struggle I am happy to be able to provide hope for those Narcoleptics in a darker time.
DeleteHang in there, things will get better. It's all about finding whats best for you, what works for you. :)
Sigh, yes, finding the right meds and whatnot is mentally exhausting at this point. Do you share what you're taking or is that too personal?
Delete