Julie Flygare has been a huge advocate and voice for Narcolepsy over the years, every time I check her blog she is always up to something exciting. Whether she's writing a book, running a marathon, or working towards helping the FDA understand narcolepsy she's constantly striving to better the lives of Narcoleptics. If you do not follow her blog and you are affected by Narcolepsy or interested in Narcolepsy I don't just strongly suggest...I insist you head over to her site and subscribe to her or at least bookmark it. You'll be constantly inspired by all she does, all she is and how much she truly lives her life to the fullest.
Julie Flygare: REM Runner Blog
She recently contacted me about a survey and spreading the word about an upcoming meeting help by FDA that was focused on further understanding Narcolepsy Patients. The survey, the meetings, and the more we spread the word the better chance we have at properly educating the FDA. With such a large blogging community I was hoping that a few of you could take the time to take a survey. The survey takes about 15-20 minutes and is for people with narcolepsy, people who know someone with narcolepsy, and of course people who are simply affected by narcolepsy. It's an opportunity for everyone to share their struggles, their victories and all that comes with naroclepsy. Narcolepsy is different for everyone and not one medication, schedule or lifestyle is the answer. With the help of our community coming together we can open doors for ourselves and create a brighter future.
Julie has written a blog that I have attached below which has more information than I could ever provide; go ahead and read more and please please please take the survey(also linked below).
Thank you for reading and thank you in advance for your participation. The narcolepsy community thanks you.
No comments:
Post a Comment